I wasn't given a specific diagnosis other than I had kidney disease
I have Tubular Interstitial Nephritis Uveitis TINU. It is a rare autoimmune condition that causes kidney disease. I also have Epstein-Barr.
Thank You!😊
That was initially my diagnosis was just kidney disease. Then my doctor suggested a genetic test, which showed me that I have Alport syndrome. Ask your nephrologist if a genetic test would be a good idea to find out what type of kidney disease you have the other way of finding out is to do a tissue biopsy of your kidney, which I do not recommend Unless it becomes absolutely necessary
In the United States, a kidney disease is considered rare if it affects fewer than 200,000 people. There are approximately 150 different types and subtypes of rare kidney diseases, which can make them challenging to diagnose.
While 37 million Americans have some form of kidney disease, rare kidney diseases make up only a Show Full Answer