Yes, Focal Segmental Glomerulosclerosis (FSGS) is considered a rare kidney disease. It affects about 7 people per million each year. In FSGS, scar tissue forms on the tiny filters in the kidneys (called glomeruli), which reduces how well the kidneys can do their job.
FSGS can be caused by an inherited gene mutation, but many Show Full Answer
Yes, Focal Segmental Glomerulosclerosis (FSGS) is considered a rare kidney disease. It affects about 7 people per million each year. In FSGS, scar tissue forms on the tiny filters in the kidneys (called glomeruli), which reduces how well the kidneys can do their job.
FSGS can be caused by an inherited gene mutation, but many people have no known cause at all.
Some common signs to watch for include:
- Swelling in your legs
- Protein in your urine (proteinuria)
- Low protein levels in your blood
A kidney biopsy is needed to confirm an FSGS diagnosis. Managing FSGS focuses on preserving kidney function and slowing disease progression. Here are some key steps that can help:
- Work closely with a nephrologist — ideally one familiar with rare kidney diseases or FSGS specifically
- Take prescribed medications — these help manage symptoms and protect kidney function
- Monitor your urine and blood regularly — keeping track of protein levels and kidney function is important
- Advocate for yourself — prepare a list of questions before doctor appointments and don't hesitate to seek a second opinion
- Look after your mental health — living with a chronic condition is tough, and stress can affect your physical health too
If FSGS progresses to kidney failure, dialysis or a kidney transplant may become necessary. Staying proactive and informed is one of the best tools available.
October 6
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