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Going from 30 to 40 and back again . Even went down to 17 but my doctors dont seem to be concerned. I was in an F5 tornado in Joplin , mo. In 2011 and crushed in my home so my Kidney desease is ranked as AKI WITH CKD. I was stage 3 for 8 years then I got sick and since have a gfr of 3b boarding on stage 4
Im a very active 73 year old and want to live but it concerns me that my Nephrologist does explain the plan ahead and says dont worry we are monitoring it
My BP has been steadily high 148/… read more

August 10
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MyKidneyDiseaseTeam

First, surviving an F5 tornado and still being active at 73 is genuinely remarkable β€” that kind of fight clearly hasn't left you. Your concerns are completely valid, and wanting to understand your care plan is not only reasonable, it's important.

Your situation β€” having both AKI (acute kidney injury) and CKD β€” can cause eGFR Show Full Answer

First, surviving an F5 tornado and still being active at 73 is genuinely remarkable β€” that kind of fight clearly hasn't left you. Your concerns are completely valid, and wanting to understand your care plan is not only reasonable, it's important.

Your situation β€” having both AKI (acute kidney injury) and CKD β€” can cause eGFR fluctuations, which may explain why your numbers move around. However, a dip to 17 is significant, and it's absolutely fair to want more explanation from your care team. Here are some questions worth bringing directly to your nephrologist:

- What is causing my eGFR to fluctuate so much, including that drop to 17?
- At what eGFR level would dialysis become a conversation?
- What is the specific plan to slow progression from stage 3b toward stage 4?
- What can be done to better control my blood pressure?

That last point matters a lot. A blood pressure consistently at 148/87 or higher can actively accelerate kidney damage. Controlling it is one of the most important tools for protecting remaining kidney function and reducing the risk of needing dialysis or a transplant down the road. Some practical steps that may help support kidney health at your stage include:

- Reducing sodium intake to help manage blood pressure
- Asking for a referral to a kidney dietitian β€” diet adjustments at stage 3b can make a real difference
- Avoiding NSAIDs (like ibuprofen) and other medications that can stress the kidneys
- Staying physically active in ways your doctor approves β€” which sounds like something you're already doing well

If you feel your questions aren't being answered clearly, it is completely within your rights to ask for a longer appointment specifically to discuss your care plan, or to seek a second opinion from another nephrologist. You deserve to understand what's happening with your own kidneys.

August 10

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