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Real members of MyKidneyDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 14
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Answer Summary

Members with CKD shared their experiences with the challenge of balancing hydration while dealing with frequent nighttime urination, with many... Read more

Members with CKD shared their experiences with the challenge of balancing hydration while dealing with frequent nighttime urination, with many relating to the exhaustion it causes. Several members offered practical tips like adding lemon to water for taste, using sports-top bottles to track intake, and researching tools like fatSecret.com to monitor diet. A recurring theme was the importance of doing your own research, building a team of specialists, and understanding that hydration needs can vary greatly depending on your stage of CKD.

A MyKidneyDiseaseTeam Member

Who sleeps with ckd by the time you get down into a deep sleep you have to get up and pee and start all over again. That's why we're tired during the day.

June 14
A MyKidneyDiseaseTeam Member

Hi! I feel the same—being tired from awakening throughout the night. I know hydration is important, but I don’t care for the tastelessness so I add lemon slices. Still, it’s hard to get so much water into the body. Judi in RVA

June 17
A MyKidneyDiseaseTeam Member

Anyone have a clue how to turn the nighttime peeing into daytime peeing??

June 14
A MyKidneyDiseaseTeam Member

You must do research concerning your individual kidney situation. Depending on your situation things can be different. But most all situations demand that you keep hydrated. Some of us have to watch out for over-hydration.

I had shingles in November (not knowing that people with CKD should get the vaccine against shingles), which led to complications and eventual over-hydration with water in my lungs (pulmonary edema), and water on/in my heart. My eGFR dropped from 40 to 15. It is presently at 22 UPDATE NOTE: As of late July/26 it has risen to 29 and seems to be holding there). I was in hospital for 12 days (Jan 9 to 21). I didn't know if I was going to make it for the first couple of days.

Now I have to keep my liquid consumption to 1.5 liters. When you're restricted, that water tastes sooo good! I have to measure my water and if I have a tea or other liquid, I have to cut back on water by the same amount.
I'm not sure which is the hardest: when I had to struggle to drink 6 glasses per day, or now that I can only have 6 glasses. LOL

Seriously though, you must be your own researcher. Doctors know very little about living with CKD, and situations vary. So research, research, research. However, be extremely careful about the many claims of 'cures', There are many false claims out there. Best to check with trusted sites.

June 23 (edited)
A MyKidneyDiseaseTeam Member

You have to do a lot of research on your own docs don't tell you much I keep track of oxalate potassium proteins sugar phosphorus I get this info from my food data or fat secret.com doc recommended a fulvic acid to take it has improved my kidney from severe to mild good luck lots of info out there

June 23

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