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A MyKidneyDiseaseTeam Member asked a question 💭
Waycross, GA

I had open heart surgery August 2025. While in surgery kidneys failed. Stage 4 CKD. Got better and off dialysis. My eGFR level went from a 1 to a 26. Then I have been dropping 2 points for the past two months and now at 22. Im scared cause its getting worse. Is this normal? Help

June 2
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A MyKidneyDiseaseTeam Member

Hi Dana, Although my own conditions are not as serious as your own I did get stuck with the thoughts of "I'm heading one way" which wasn't in the direction I wanted.

I was all consumed with the health I had lost, and with the things I can no longer do and was looking at a bleak future.

I'm 46, Stage 3A and also my arteries are so thick with plaque, that the Dr compared them to a 80 year old smoker.
I've never smoked, and have always prided myself on my "good health".

However, since I found this Forum, I have learned to find peace of mind, thanks to the invaluable source info, advice, support and understanding of the people and the Team.

I've learned to appreciate the things I can do, whilst I can still do them.
I agree with the prior response from the team that your Kidneys are fighting for you to have jumped from 1-26. You got hit with a curve ball and still smashed it out of the ground, so try to be impressed with yourself.
That tells me that you are doing something right and its now about maintaining the higher end of those numbers.

We will face death at some stage, and it seems you have already come close, but You, Me, and Everyone here aren't dead yet, so lets not wait for it, lets live the life we have left.

Fck Waiting on Death, Let Death Wait for us.

June 5
A MyKidneyDiseaseTeam Member

Amen because without God I am nothing. It's just the devil putting bad thoughts in my head. Thank you for your reply.

June 3
A MyKidneyDiseaseTeam Member

Hi. My name is Sandy/65. For the past 3 years my efgr gas been declining. I am now at 14. Different nephrologist have told me different this. When I was a 16 I was told dialysis at 14. When I was 14 I was told when I get to a 10 dialysis. At one time I was really stressed, worrying bout dialysis. I finally decided that I was not going to be on "death row" worrying. So now I'm mostly stress-free and trying to be content for what-ever time I've got left. My motto is "I've got God, and God got me. Amen! Hallelujah!

June 3
A MyKidneyDiseaseTeam Member

I’m praying for you that you get the help you need and you heal

June 6
MyKidneyDiseaseTeam

First, take a breath. What you've been through is incredibly hard, and it makes complete sense that you're scared. The fact that your eGFR climbed from 1 to 26 after surgery is actually remarkable — that's a sign your kidneys have real fight in them.

A small drop after that kind of recovery can happen, but a consistent Show Full Answer

First, take a breath. What you've been through is incredibly hard, and it makes complete sense that you're scared. The fact that your eGFR climbed from 1 to 26 after surgery is actually remarkable — that's a sign your kidneys have real fight in them.

A small drop after that kind of recovery can happen, but a consistent 2-point monthly decline is something to bring up with your nephrologist right away. They can investigate what's driving it and adjust your care plan. Stage 4 CKD means your eGFR is between 15–29, so at 22 you're still within that range. The goal now is slowing progression. There are real things that can help:

- Follow a kidney-friendly diet — your care team can refer you to a renal dietitian
- Avoid smoking and heavy alcohol use — both can accelerate kidney damage
- Stay on top of all follow-up appointments — monitoring is everything at this stage
- Manage your mental health — fear and stress are real and can affect outcomes

Speaking with a therapist who understands chronic illness can be genuinely life-changing. Ask your nephrologist for a referral. Many MyKidneyDiseaseTeam members have shared that connecting with others who truly understand this journey makes a huge difference. You are absolutely not alone in feeling this fear — and reaching out, like you just did, is already a brave and important step.

You're not waiting for anything. You're fighting. 💙

June 2

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