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Real members of MyKidneyDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 20
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MyKidneyDiseaseTeam

What should you do if you discover your kidney disease was missed earlier?

It's understandable to feel frustrated or upset when signs were overlooked. Here are some steps to consider moving forward:

Talk to Your Current Healthcare Team
Schedule a conversation with your nephrologist or primary care doctor. Ask them to review Show Full Answer

What should you do if you discover your kidney disease was missed earlier?

It's understandable to feel frustrated or upset when signs were overlooked. Here are some steps to consider moving forward:

Talk to Your Current Healthcare Team
Schedule a conversation with your nephrologist or primary care doctor. Ask them to review your medical history and explain what signs may have been present earlier. Understanding the timeline can help you process what happened and plan better care going forward.

Consider Getting a Second Opinion
If you feel your treatment plan isn't working or symptoms are worsening, seeking another provider's perspective can be valuable. Another specialist might have experience with rare conditions that could have been initially missed.

Focus on What You Can Control Now
While you can't change the past, you can take charge of your kidney health moving forward. Work closely with your care team to slow disease progression and manage any complications. Make sure you're getting regular monitoring through blood and urine tests.

Address Your Emotional Health
Finding out about a delayed diagnosis can be stressful. Consider connecting with others who understand through support groups, or seek professional help if you're struggling with anxiety or depression related to your diagnosis.

Ask About Genetic Testing
If there's a family history of kidney disease, genetic testing might provide answers about why signs were missed and help with more accurate treatment planning.

January 20

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